PKD

We are asking for prayers regarding the following information. Basically, Nicholas has been invited to participate in a research study for young PKD patients. The medication involved in the study is actually the medication that he is currently taking and is not a research drug.
There are a lot of factors involved and we truly want the Lord's will in all this. The following is the information about the study.

University of Colorado Health Sciences Center
Polycystic Kidney Disease Research Group
13001 E. 17th Place Mail Stop C283
P.O. Box 6508
Aurora, CO 80045


Colorado Children's study currently enrolling

Read a recent news release about a Seattle 7th grader taking part in this study.Children and young adults between the ages of 8 and 21 with ADPKD and normal kidney function are eligible for the research study at the University of Colorado in Denver. The study is exploring the use of two medications, pravastin and lisinopril, to slow the growth of cysts in PKD patients. Researchers there believe that early intervention in young people may help preserve kidney function and avoid complications from PKD in later life.

Both pravastatin and lisinopril are currently on the market.Pravastatin has been used to treat high cholesterol levels, while lisinopril is commonly used to treat high blood pressure. Participants do not have to have high blood pressure or high cholesterol to participate in this study.

The study is taking place at The Children’s Hospital in Aurora, Colorado.

The study will involve three hospital visits over a three-year period at the study site, The Children’s Hospital in Aurora, CO. Each hospital visit will last two days and involve blood pressure measurement, blood and urine testing and radiology (x-ray) studies. Between hospital visits, participants will be asked to take medications and to record blood pressure measurements at home on a regular basis. This study is funded by the National Institutes of Health (NIH) and there is no cost for participation. Travel to Denver is paid for young adults ages 18 years and older. For children under 18 years of age, travel to Denver is paid for the child and for one parent. In addition, study medicine and home blood pressure monitors are provided free of charge to participants.

The principal investigators are Robert W. Schrier, MD and Melissa Cadnapaphornchai, MD. For more information, please call 303-724-1690 or toll-free at 1-877-765-9297 or email PKD.Nurse@ucdenver.edu.